As the parent of a child with medical complexities, one thing that you need to account for is the transition from pediatric home health care to adult care. Though this transition seems like an easy one, there are a few common mistakes that we see made during this time that seem to complicate things later one.
The team at Evergreen Home Health Care provides families in the Denver area with the home health care that they need to live a full and comfortable life. Today we’re going to talk about a few of the mistakes that we see often and how you can anticipate them in advance so that you’re able to avoid them.
Avoiding the Conversation From the Start
As we mentioned before, many people believe that this is a transition that is intended to be easy, but it doesn’t always go that smoothly. One of the first mistakes that parents make is avoiding the conversation of the transition from the start. Now, this conversation isn’t just one that happens between two parents, but it’s one that occurs between so many different people.
Talk to Doctors
One of the first group of people that you’re going to want to have this conversation with is the primary physician and team of doctors that your child works with. One of the primary reasons that we suggest having this conversation is because it can provide you with an idea of what the care that they need is going to look like.
Aside from just gaining an understanding of what you can expect, you can continue to work together to find the solutions that your child needs in advance so that when the time finally does come, you’re ready for this transition to happen.
Talk to Your Child
Though they aren’t going to be one of the forms of care that are provided, they are going to be the patient which makes this conversation even more important. Given that so many things will change during this time, it’s crucial to have this conversation with your child so that they understand how the transition is going to change things.
In many cases, the routine that your child has had for years is going to change. At times, even their care provider may change. These are just a few of the reasons that you should be preparing them for the transition from pediatric to adult care, but there are countless others. As you open up the floor for this conversation, it’s also important to talk with your child about all of the different things that adulthood will come with, too.
Not Preparing Your Medical Facility
As we mentioned earlier, one of the changes that may happen during this transition is a change of doctors. The main reason that this is a mistake that’s made is because of how easy it seems to transfer medical records or find the right doctor. More often than not, the hardest part of this transition is finding a doctor that offers the care your child needs that they also enjoy.
By preparing your medical facility for any changes that may need to happen, you can ensure that the medical records your child had with one are provider are transferred to their new one. Make sure you’ve taken enough time to find a new doctor, if that’s something that you have to worry about, and the like.
The sooner that you get these medical pieces in order, the less you’ll have to worry about during the actual transition from one medical provider/facility to another.
Ignoring the Other Transitions Happening
Many parents forget that other medical transitions are happening at this age and not just the medical care. While it’s vital that you talk to your child about how their health care is going to shift, you should also be talking to them about the different ways that their lives will also be changing.
Level of Care
While we are still talking about health care, one area that you’ll want to talk to them about is the amount of care that they’ll be receiving. Will the individual that’s providing care to them also be caring for their finances and transportations? What level of independence should the be anticipating? This should be a conversation that you have with them before anything is finalized, but should cover again once everything is completed so that they know what to anticipate.
Many children with medical complexities do go on to live at home with their parents into adulthood, but that’s not always the case. That being said, if their living quarters are going to be changing at all, it’s a conversation that you should certainly be having. If you’re interested in options that are available outside of your home, talk to your child’s medical professional and see what options they suggest.
Attending school and earning an education is something that children often do on a day to day basis. As they transition into adulthood, this may be something that is also changing for them. Something that you should be talking to your child about is what their desires are after they’ve completed high school. Are they interested in attending college or are they considering any other educational options? Asking them what types of desires they have for their education at this point is something you should not only be talking about, but also be planning for.
Career or Jobs
If your child isn’t considering the next level of education, are they interested in finding a place to work? There are so many different opportunities available for individuals with medical complexities that you should always be open with your child about what potential careers and jobs they could have later on. Presenting the various reasons that a job is such a fantastic opportunity for your child is something that we suggest talking to them about during this transition.
If your child understands that there are more benefits than the money they make during that process, they’re much more likely to see the value that the job of their choice presents them with.
Does your child have any friendships or relationships currently? How are these relationships going to shift as your child enters adulthood? These types of questions and conversations are others that we suggest having with your child through this transitioning time. By openly talking to your child about these relationships, you can get an idea of where their feelings are and how you can help them to have the most successful relationships possible.
Let Evergreen Home Health Care Help the Transition
Transitions are difficult, and this one is no different. Rather than tackle this transition of care on your own, allow for our team to help you make this next transition as easy as possible by standing alongside you and your child.
Evergreen Home Health Care loves providing children and adults alike with the best care possible. If you’re in need of care for your loved one, reach out to our team today, and we would love to provide you with a full consultation on how we can help you. For additional content and topics that you might find helpful, be sure to check out our blog space.